HIGH HOPES FOR A GENE-THERAPY CURE

Relatively few people suffer from cystic fibrosis in the UK (only 8,000), which means that this charity finds fundraising difficult - and expensive. Even so, it invests £3.5 million a year in gene-therapy research, with clinical trials planned for 2008 and 2009. It also provides information and advice to people affected by the disease, receiving nearly 30,000 posts a year on the website's community forum. The annual report is clear and informative, although a commentary about how achievements matched up to targets would help.

Are you from this charity? Have your say.

QUALITY OF REPORTING

What is this?
71 %
How much info does the charity want to share? This score, taken from our search for 43 key points in the annual report, gives the answer. Top mark is 100%. Anything over 70% is a good effort.

SIZE OF CHARITY...

What is this?
Medium
We only profile the largest charities in England & Wales, and our sizes are relative to the largest and smallest among them. So where we describe a charity as 'Small', it is still much larger than the national average.

HIGHEST SALARY

What is this?
£80k to £99k
Taken from the vague bandings given in annual reports; note that 'Under £60k' could be £9k or £59k. Nonetheless the number of bars should roughly correlate with the 'Size of charity' bars.

ETHICAL INVESTMENT POLICY

What is this?
Unknown
We asked the charity if it has an ethical investment policy. If yes, it gets an angel. Those with no policy but which don't invest in tobacco/arms get a halo. Those without investments, or who didn't respond, appear neutral. Those with stakes in arms/tobacco get a fallen angel.

Reviewed: 2009-07-10     Accounts ending: 0000-00-00

IN SHORT

Who/what it helps

  • People affected by cycstic fibrosis
  • Their families & carers

Where

  • UK

Providing

  • Research into causes and treatment of cystic fibrosis
  • Helpline
  • Informational and educational materials
  • Grants to individuals
  • Research grants

VITAL STATISTICS

ANNUAL EXPENDITURE
£9,681,000
What is this?
Of all the charities we profile...
- Less than £1m is tiny
- £1m to £5m is small
- £6m to £10m is medium
- £11m to £50m is large
- Above that is very rare
SPENT ON CHARITABLE WORK
72%
The rest usually goes into raising more income. A little covers legal requirements.


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Reader's comments

Submitted by Adam Rothwell on Fri, 25/07/2008 - 9:38pm.

Toby: We could do this, and indeed we have done. But we're cautious about plugging the results too much. That's because the 'charitable expenditure' figure we publish here (and on all our profiles of charities) can be misleading.

The main reason for this is that 'charitable expenditure' is legally defined as being (virtually) all of a charity's expenditure except for fundraising costs and the cost of getting the accounts done. So 'charitable expenditure' isn't the same as 'money which goes directly to the cause'. Charities with HR departments, for example, must categorize the cost of running those departments as 'charitable expenditure.' This might seem a bit counter-intuitive, but it does make sense (big charities couldn't do fieldwork if they didn't have office backup).

Second, charities which receive a lot of income from government receive uniformly high charitable-expenditure ratios. That doesn't mean their fundraising is efficient. What it does mean is that a lot of their income comes in without any fundraising effort - or at least any fundraising effort which shows up in the accounts. It could be the case in these charities that their fundraising is woefully bad. But, because only a small portion of the charity's total income was raised in this way, that wouldn't show up on our profiles.

Nonetheless, we have crunched the numbers in the way you suggest. And you can see the results here.

Adam, Intelligent Giving


Submitted by Tobyr (not verified) on Fri, 25/07/2008 - 12:01pm.

Adam,

Given all the data you've collected on charities accounts, would it be possible for you to publish some comparative data for all the charities you've covered? I was thinking in particular about the % that's spend on charitable activities box - 78% sounds like quite a bit to me, but I've got no idea what the average for the charitable sector would be...

Thanks...
Toby


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